In September, the Alzheimer’s Association launched I Have Alzheimer’s Disease, a new 23-page section of alz.org. This robust site offers information and tools to empower a growing group of individuals living in the early stage of Alzheimer’s or another dementia to live their best life for as long as possible.
“The Association obtained input from people living in the early stage of the disease, including members of our Early-Stage Advisory Group. We found that individuals in this stage need to do more than learn about the disease. They want to know how others have handled receiving a diagnosis and what they are doing to lead a fulfilling life,” said Monica Moreno, director, early-stage initiatives, Alzheimer’s Association. These Web pages are designed to do exactly that and more.
The sentiment underlying I Have Alzheimer’s is simple: You are not alone. The Web section provides information and insights from real people living with the disease to help their peers move past the feeling of isolation and on to planning, preparing and receiving support.
“There’s a lot of information to digest after diagnosis. Some aspects can be difficult and we encourage users to take their time and learn at their own pace,” Moreno said. As changes occur, new questions will come up. And we’re here to answer them.
To learn more, visit I Have Alzheimer’s at www.alz.org/IHaveAlz.
One thought on “I Have Alzheimer’s website shows people with the disease they are not alone”
I believe it is important for children to understand Alzheimer’s disease so they can still interact lovingly with family members who have this disease. I am a 17 year old college junior, Alzheimer’s researcher, and Alzheimer’s advocate.I grew up as a caregiver to my great grandmother who had Alzheimer’s disease. After her death, I founded a nonprofit organization that has distributed over 28,000 puzzles to Alzheimer’s facilities. Recently, the book I coauthored explaining Alzheimer’s disease to children became available on Amazon.My hope was to provide some helpful coping mechanisms to the many children dealing with Alzheimer’s disease among their family members. 50 percent of the profits from this book will go to Alzheimer’s causes. I think this book could help a lot of children and families. “Why Did Grandma Put Her Underwear in Refrigerator? A Book Explaining Alzheimer’s Disease to Children.” http://amzn.to/13FYYxh