January Volunteer Spotlight: Denise Butler

16 Jan

VolunteerSpotlight - Denise Butler

Denise Butler

Congratulations to our January Volunteer of the Month Denise Butler! Denise first connected with our chapter four years ago as a volunteer for our Peers and Partners program. She and her husband moved to Williamsburg to help support her father-in-law when he was diagnosed with Alzheimer’s. When Denise’s own mother was diagnosed with vascular dementia, she struggled to find resources for support after the diagnosis. In 2010, she started out as a volunteer at Riverside Center for Excellence in Aging and Lifelong Health (CEALH). In 2014, she wanted to do more for her community and has volunteered with our chapter ever since.  

While Denise was born in Memphis, her father was in the Navy, and she moved around a lot growing up. She went to college locally at Old Dominion University and then married her husband Michael. As Michael was in the Foreign Service, they lived in places all around the world for over 30 years. These travels took them to places such as Portugal, Bucharest, Buenos Aires, Norway, Spain, El Salvador and Finland.

While her husband was teaching at West Point, Denise achieved her Masters in Counseling. Eventually, her husband left the Foreign Service to help provide support to his father who was diagnosed with Alzheimer’s. The couple moved to Williamsburg where Denise started volunteering at the Riverside Center for Excellence on Aging. She started overseeing the geriatric assessment clinic 5 years ago and continues working there to this day. Denise became a certified counselor and helps facilitate the Riverside FAMILIES program.

Denise started volunteering with the chapter in 2014 as a facilitator of our Peers and Partners early-stage support group. She also plans to facilitate a new support group starting this February for caregivers, family, and friends of persons with Frontotemporal Dementia (FTD). FTD is so different from other forms of dementia. Caregivers to those who have been diagnosed with FTD go through vastly different scenarios that the caregivers of those diagnosed with vascular dementia. Denise is excited about the opportunity to learn more about the specifics of FTD and help loved ones of those who have been diagnosed with FTD with their specific challenges.

Denise also started a Memory Cafe with the Riverside Center for Excellence on Aging and Lifelong Health in Williamsburg sponsored by the Peninsula Agency on Aging, which is about to start meeting twice a month. Memory Cafes are so important to Denise because they provide a place for socialization for the those diagnosed at any stage of dementia and their care partners. She enjoys being a part of these meetings and it means so much to her how everyone is able to come together for coffee, treats, and meaningful chit-chat.

Denise has found working with those diagnosed in the early stages to be particularly beneficial. She has been affected deeply by the families and her interactions with those who come to her support groups and meetings. It has changed how she interacts with people on a daily basis. She is much more empathetic to everyday challenges. Helping those suffering with dementia is not only a professional passion, but also a very personal passion for Denise. This is her vocation; to work with families and help caregivers with their own wellness.

In her spare time, Denise loves to read and take care of her two dogs, Paco and Heidi. Denise and Michael also travel frequently to visit their two sons, one who lives in Silver Spring, Maryland and the other in Greensboro, North Carolina. Often the family will meet up in Charlottesville to spend time together.

We are so lucky to have Denise as a dedicated volunteer to our chapter! To learn more about how you can volunteer for our Chapter please visit our website at https://www.alz.org/seva/in_my_community_104988.asp

December Volunteer Spotlight: Glenn Jenner

15 Dec

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Gino Karen Glenn

Glen Jenner (far right) presenting Executive Director Gino Colombara and Board President Shannon Kane with last year’s Beach Ball donations!

Congratulations to our December Volunteer of the Month Glenn Jenner! Glenn first connected with our chapter after joining the Parrot Head Club of Tidewater about 15 years ago. While learning more about the club’s activities, he heard about a volunteer opportunity to help run the annual Charity Beach Ball to benefit the Alzheimer’s Association Southeastern Virginia Chapter. The opportunity connected with Glenn as he had seen the effects of Alzheimer’s disease firsthand after losing his grandmother to Alzheimer’s and later his father to a related dementia. For the past 13 years, Glenn has volunteered on the Beach Ball committee and helped raise over $600,000 for our chapter since the event’s inception, last year alone brought in close to $76,000. About 6 years ago, Glenn was asked by our executive director Gino Colombara to join our Chapter’s Board of Directors and to this day is still an active member.

Glenn Jenner is originally from Northern Virginia and moved to Virginia Beach in 1982 for school. After graduating in 1986, he started Brothers Printing and has served as the business’s president since then. Brothers initially supplied local customers with vital business forms and office paperwork before adding key promotional items to the mix in 1992. Brothers Printing now serves customers nationwide with a variety of different printing services. Glenn says his favorite part of the job is interacting with his longtime customers, many of whom have stayed with Brothers since the print shop opened! While they usually work on business printing projects, unique requests are made too. For example, one of Glenn’s favorite projects was manufacturing 500 pairs of custom flip flops that left logo impressions in the sand when worn.

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Glen Jenner (Center) with other festive Beach Ball attendees.


When Glenn is not working, he likes to spend time with his wife Denyse Jenner and their rescue dog Ginger, who the couple saved from a high kill animal shelter after Denyse saw the dog’s picture on social media. The couple also loves to cook and entertain small groups of friends at their home in Virginia Beach. When they have the time, Glenn and Denyse love to travel. Glenn’s favorite travel spots include Florence, Italy and Cyprus, Greece where he says he had the best food in his life.

Our Chapter is so grateful to Glenn for being part of the legacy that will help us achieve a world without Alzheimer’s! To learn more about how you can volunteer for our Chapter please visit our website at https://www.alz.org/seva/in_my_community_104988.asp

Why I Walk with Mary Lou Jacinto

29 Nov

Carol Jacinto

My mom was first diagnosed with Frontotemporal Dementia in June 2012. At her last appointment about a month ago her diagnosis changed to stage 6 or moderately severe/mid-stage Alzheimer’s disease. Watching my mom fade away a little more each day is not only heartbreaking for me, it’s terrifying for her. What I want the most for her is that she enjoys her life and does the things that make her happy. Dancing is one of her favorite things. Her favorite dance the Wobble inspired my team’s name the Wobbling CAROLers. I want to do all I can to raise awareness about Alzheimer’s so that hopefully my own daughters aren’t one day sitting in the doctor’s office hearing the same news about me.

Mary Lou Jacinto
Team Captain of Wobbling CAROLers– Caregiver for her mother Carol
Coastal Virginia Walk

Southeastern Virginia Raffle Car Winner Announced!

21 Nov

Congratulations to Linda Fanning from Hampton on winning the 2016 Toyota Camry SE in our raffle drawing! Linda Fanning has walked with us since 2012. She is the team captain of the Cherished Memories Team at the Peninsula Walk to End Alzheimer’s® and is a Grand Champion fundraiser this year! ​​ The car was made possible thanks to Walk supporter Pearson Toyota in Newport News. Thank you to​​ Regional Walk sponsor, BayPort Credit Union and The Hampton Roads Show for helping us pick the winning ticket. ​

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Why I Walk with Ann Bolen

15 Nov

Why I Walk Wednesday- Ann bolen

I’m walking to help reclaim the future for millions. By participating in the Alzheimer’s Association Walk to End Alzheimer’s®, I’m committed to raising awareness and funds for Alzheimer’s research, care, and support. Our family has been personally touched by “ALZ” and the year has been fraught with changes.  Roger, my husband of 34 years is fighting to maintain his independence and our life together. Our team, Peers and Partners-VB, is the monthly support group for Virginia Beach. Together we learn about “AL” and support each other. Our friends in this group have become our closest supporters- One can’t know the devastation of this disease until you walk in our shoes.

I need your support to do my part! Please make a donation to help the Alzheimer’s Association advance research into methods of treatment, prevention and, ultimately, a cure for Alzheimer’s.  For the millions already affected by the disease, the Association offers care, education, support and resources in communities nationwide. Every little bit helps but your support means the world.  If you don’t wish to support, please let your elected officials know to wish them to support ALZ research.  THAT would mean a lot too.

Ann Bolen
Team Captain of Peers & Partners VB, a Top 10 Team for CoVA

 

 

November Volunteer Spotlight: Tony Macrini

13 Nov

VolunteerSpotlight - TONY MACRINI

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Tony Macrini emceeing at the Williamsburg Walk to End Alzheimer’s.

Congratulations to our November Volunteer of the Month, Tony Macrini. Tony is a talk show host for the WNIS AM790 Morning Show and a long time friend to the Alzheimer’s Association. Tony, for several years, has volunteered as emcee for our Peninsula and Williamsburg Walks, lending his booming voice to our cause.

Tony Macrini was born in New York City and attended Parochial schools while growing up. Tony, his younger sister, and parents moved to New Jersey in 1961. He attended and graduated from South Brunswick High School where he was active in Theatre Arts, cross-country, Wrestling, and Track. Shortly after graduation, Tony enlisted in the Marine Corps. He was honorably discharged and then went to broadcasting school. Tony has been a broadcaster for 35 years – 33 in Virginia. He lives in Williamsburg and has two sons- his oldest serving in the Navy.

Macrini and his team start their broadcasting day at 6 a.m and deliver programming until 10 a.m., Monday through Friday on WNIS AM790. They’re up before the sun with the focus on local weather, traffic, headlines and the time of the day. His show includes nationally syndicated segments by Mike Evans from Hollywood and Earl Pitts, America’s favorite redneck. Tony’s entertaining and dynamic conversations focus on a variety of topics from politics to practically anything. The show also combines up-to-the-minute FOX news, Wall Street Journal Reports, weather, traffic, sports and interesting guests.

Through his morning show, Tony has provided the chapter with much-needed exposure in our local area. Tony has welcomed many members of our chapter, Alzheimer’s Association staff, volunteers, and local Alzheimer’s disease experts on his show over the years. Thanks to his show, our chapter has been able to educate thousands of local residents about Association services, programs, and fundraising efforts.

Working with the Alzheimer’s Association Southeastern Virginia Chapter, Tony hopes to continue increasing awareness so one day soon we will have our first of many survivors.

To learn more about Tony Macrini’s show or to listen live please click here: http://www.wnis.com/programming/tony_macrini

If you are interested in volunteering with our chapter, you can learn more information on our website at http://www.alz.org/seva/in_my_community_104988.asp

Why I Walk with Robin Jones

1 Nov

Why I Walk Wednesday- Robin Jones

I walk in honor of my mom Otelia Jones who passed away a year and a half ago. She was a very loving, strong, and wonderful mother of 13 kids. She always made sure we came together for all the major holidays. I will always remember singing Christmas carols on Christmas Eve to having big Thanksgiving dinners with all her kids. Family meant the world to her. She also loved to cook and sing in the church choir.

My mom passed away 6 months after being diagnosed with Alzheimer’s. In those 6 months, I watched this disease take away everything she has ever known. It was so hard watching this disease diminish her capacity to remember the people she loved so much. I also walk because I don’t want other families to go through what mine has gone through; watching their love for one another slip away each day.

I’m hoping that a cure is soon found to end this horrible and debilitating disease. Until then I will walk to end Alzheimer’s.

Robin Jones
Team Captain, Making a Difference
Peninsula Walk to End Alzheimer’s