Tag Archives: Walk to End Alzheimer’s

How to register for The Longest Day

29 Nov

To get started, select an activity you love
chooseanactivity

Choose something you love — or honor a caregiver, someone living with Alzheimer’s, or someone you’ve lost by selecting his or her favorite hobby. From swimming to scrapbooking, you’re limited only by your imagination.

Choose a way to participate

newparticipants

Start or join a team, host an event, or register as an individual. Choose the way that works best for you! Have friends and family across the globe that want to join you? Start an Anywhere Team.

Registration donation

Register now through February 28 and your registration donation is only $15. Beginning March 1, registration donation is $20. Only team captains pay the registration donation, the registration donation is not required to join an existing team. Hold your activity anytime you like, anywhere you like. Don’t wait, get started today!

About The Longest Day

The Longest Day® is a team event to raise funds and awareness for the Alzheimer’s Association®. Held annually around the date of the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers. Teams are encouraged to create their own experience as they fund raise and participate in an activity they love to honor someone facing the disease.

 

Why I Walk Wednesday with JoAnne Coniglio

26 Oct

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His Voice

I am writing this on behalf of my brother Revell Milliner. He was often too shy to use his voice. He cannot speak today because a dementia-like illness took his life in 2007. His disease lasted about seven years. When we were children our parents often sent both
of us to the little country store down the street from our house to pick up necessary items like Maxwell House coffee. They knew he was too shy to ask for items by name, and they knew that his little sister was not too shy to say anything. They could count on him to patiently control his rambunctious little sister if she would just be his voice.

He was not always comfortable speaking but he could speak to nature with love and compassion like no one I have ever known. He frequently brought home injured animals that he found on the farm or in the woods. He was hunting and fishing at a young age. What I remember most about what he brought home from those hunting trips were injured animals . One was a fox that had been caught in a trap. He kept it in a cage in the back yard until its leg was healed enough to let it go back to the wild. I also remember the crow with the injured wing, that he nursed back to health. I’m sure that the same crow returned to our house often over the years.

As and adult he worked many long hours, but he was always happiest when he was out in nature. He spent many hours in his 3-acre garden raising the most delicious strawberries and Hayman potatoes. He even had a fox that would show up most nights to eat yogurt with strawberries that my brother would feed her from a spoon. Some of his favorite hobbies were to duck hunt, fish and clam in Metompkin Bay. He could talk for hours with his friends and family. One gift he gave our children was the gift of imagination. Fairies, Santa and any magical creature became alive in his vivid tales of their adventures. About mid-way through his illness we tried to take him out in his boat on Metompkin Bay, it was devastating to watch the fear in his eyes because he was so afraid of the trip. I held his hand and tried to help him remember the past.

We watched him lose the ability to work, to garden, to hunt, to fish and to key-hole clams like no other. We watched him lose the ability to speak even to his family and nature. We watched him lose the ability to take care of himself. I held his hand all day the day he died and told him it was all okay and that he would again be able to walk in nature again and breath in the salt air.

Just the other night I dreamed that my brother was still alive and getting healthier because there was a new drug that had been developed that could gradually reverse the devastation of Alzheimer’s disease. I woke up with such excitement!!!

Two years ago, our daughter had a son and named him Revell. My hope and prayer is that through the work and support of the Alzheimer’s Association a drug will be developed in this young Revell’s lifetime.

I hope Revell’s voice speaks to us all to encourage us to support the Alzheimer’s Association and its work!

You can support the Alzheimer’s Association by donating to a Walk team or an individual walker by going to alz.org/walk 

Get more stories like these and up to date information on Alzheimer’s disease in your inbox by subscribing to the Alzheimer’s Association weekly E-News.

Why I Walk Wednesday with Joan Stevens

4 Oct

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My husband Tom was a manager of Reynolds Metal in Phoenix Arizona. He had an easy nature, loved to play golf and after he retired would often play 18 holes in the morning and then again in the afternoon.

Our lives changed the day he went out to play golf and wasn’t able to find his way back home. He was diagnosed with Alzheimer’s disease. That’s the last time he played. At the time I relied on a day center of folks with Alzheimers. It met from ten to two and gave me some much needed time. Tom then moved into a wonderful Alzheimers facility that had just been built. At that point, he had lost his ability to talk. I saw him three times a week and often we would just hold hands and spend time together. I will never forget the day he came up to me after I had arrived, looked into my eyes, put his hands on my cheeks and kissed my face all over. For that moment everything was as it was before the disease took the Tom I knew away.

I am grateful for all the support I received by those who knew about this disease. I remember my greatest insight was that when you look at someone with Alzheimers to never forget that there is something, someone there. I will walk in Tom’s memory.

Join me and Walk to End Alzheimer’s! 

Why I Walk Wednesday with Latoya Hilliard

28 Sep

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I have to say this has been one of the hardest stories I have ever had to write but its the easiest decision at least for me.  My grandmother has always been the foundation of our family and it was hard for me to watch all of her memories slowly slip away. It was like she never existed in her own mind. She will always be in my heart.  She was diagnosed in 2001 and she passed away in 2007. I walk for her and the other families’ grandparents. If it was not for her, I would not be who I am today. My family feels the same way. We walk for her and we will continue to walk until they find a cure.

Join me and Walk to End Alzheimer’s! 

Why I Walk Wednesday with Brian Rogala

14 Sep

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I walk for my mother, Astrid (“Ozzie”) who is currently living with Alzheimer’s disease. I walk with my father, Rick, my sister, Lisa, and my wife, Melissa, who have all accepted their caregiver role and fulfilled its tasks very diligently.

I walk to help raise resources and awareness for better research, for better support programs, and for better care for the individuals living with this disease.  I walk in support of the caregivers who also need our help and support.

I walk with the hopes and prayers that others can enjoy making memories with their spouses, children, parents, grandparents, aunts, uncles, siblings and friends. I walk with the hope that our efforts will ultimately lead to a prevention or cure being found.

My Mom and Dad have always been there for all of us, no matter what the circumstances may be, their support is unimaginable and reassuring. It brings tears to my eyes to think of the past years we have lost with our loved ones.

I walk for our future – a future without Alzheimer’s!!!!

May God bless us all with our challenges and in our adventures!!!!

Join me and Walk to End Alzheimer’s! 

Why I Walk Wednesday with Jessica Hubbard

31 Aug

Why I Walk Wednesday_withJessica Hubbard

The reason why I walk can all be summed up in this one picture. My father started showing symptoms of Alzheimer’s right before my 18th birthday in January 2008 at the age of 59. He would become very irritable and would mistake the television remote for the phone. By May of that year we had no choice but to place him in a facility because it was too much for me and my mother to handle alone. Weekends for the next 6 years were spent traveling to North Carolina to spend time with him. We would go to Wal-Mart to buy snacks, go to lunch and take long car rides.

In 2011 I married my husband and we held a small ceremony at the facility so he could be a part of our wedding. We quickly had our daughter Aubree Grace in 2012 because I wanted to make sure my daughter met her grandfather. Although he could never remember her name, it was a blessing to see them together.

Unfortunately my father took a turn for the worst in February 2014 and was put on hospice. He passed away on April 25, 2014, the day my daughter turned 18 months old. I am 26 years old and I have lost my father to Alzheimer’s. I walk in his name in hopes that someday there will be a cure so that my daughter does not have to witness me going through the same horrible disease.

Join me and Walk to End Alzheimer’s! 

Why I Walk Wednesday with Emily Anderson

19 Aug

Why I Walk Wednesday_withEmilyAnderson

I walk to give a voice to those impacted by Alzheimer’s.

For years, I’ve been watching Alzheimer’s take away someone very special to me. Grandma O’Neil is the women who taught me how to sass like no other and to dance like no one is watching. A hard-working woman who did everything she could to support her family, she is the reason I am volunteering and walking to end this terrible disease.

When my grandmother first began experiencing symptoms, everyone joked about the fact that she was misplacing her keys or forgetting her purse, and laughed it off as “just getting old”. Joking quickly turned to worry as she started wandering outside at night. Over the years, Grandma’s sass has turned to frustration as she no longer understands what is going on. She has no memories, no feelings of nostalgia. She is no longer able to recognize the faces of her grandchildren, her children, or anyone else she once cared for.

No one should have to go through that, which is why I am committed to raising funds and awareness for this cause.

Join me and Walk to End Alzheimer’s!